"I BELIEVE IN PINK! I believe that laughing is the best calorie burner. I believe in kissing, kissing a lot. I believe in being strong when everything seems to be going wrong. I believe that happy girls are the prettiest girls. I believe that tomorrow is another day and I believe in miracles."— Audrey Hepburn

“To be yourself in a world that is constantly trying to make you something else is the greatest accomplishment.” - Ralph Waldo Emerson

Every night, friends. You have done what you could. Let it go.

“Finish each day and be done with it. You have done what you could. Some blunders and absurdities no doubt crept in; forget them as soon as you can. Tomorrow is a new day. You shall begin it serenely and with too high a spirit to be encumbered with your old nonsense.” ― Ralph Waldo Emerson


Sunday, March 13, 2011

It"s Pink Saturday!! Only on Sunday!!

Hi there, I know I'm a day late...But it's not my fault...I was away on very important business...not my work, but my life's work...I was in Dallas attending the Translational Breast Cancer Research Consortium (TBCRC) annual face to face meeting of the Patient Advocate Working Group (PAWG). The PAWG met the day before the TBCRC meeting as a whole began, and then we mixed in and attended the other working groups as patient advocates among the research scientists. I attended as the patient advocate representative of The Johns Hopkins Sidney Kimmel Comprehensive Breast Center to the TBCRC.

More on that later in the post...But first, Don't you just love the picture? It takes me away...I also have another one for you...But I will further explain the above endeavor first...The TBCRC is a collaborative effort of Breast cancer centers of excellence from around the country that are working together within this organization to conduct research across organizations in order to come closer to a cure for breast cancer. This cooperative effort with regard to clinical trials and research, enables the centers to enroll the patients needed for participation in trials more quickly and to actually reach the number of people needed to make the research meaningful. These trials are only the research projects that are undertaken by the TBCRC. The TBRC collaborative effort  allows the researchers from these institutions to work together and to bounce ideas off of each other and to come together through two meetings a year and monthly conference calls. Through all of this there are Patient advocate representatives, ideally from each institution involved, that also have an equal voice, that speak for the layman, the patient, if you will...

What I have explained here is a very simplified and hopefully, mostly correct, version of a very complicated organization.

It is a beautiful thing, this organization to which I now belong. I am fortunate to have been selected this past summer to represent Johns Hopkins within the TBCRC.
I consider this to be an honor. I used this meeting to chose
the working groups to which I will belong and those are the calls that I will join each month in addition to the PAWG calls.

So that Ladies is why my contribution to Pink Saturday comes on Sunday! Please forgive me? Oh, the picture at the right? I think our organization is sort of like this...when all is said and done...all of our separate pink efforts will come together to form a beautiful PINK whole! My work on this is done with a group of wonderful, inspiring, intelligent women, and I sometimes look around the table and wonder how I ended up among them...
Don't even get me started on the fact the we walk among the scientists with great respect shown toward us. It is good , it is Pink!

Happy Pink Saturday! Sunday!

PS...Sorry no green...
Won't you join us?http://howsweetthesound.typepad.com  just click that link and find the rest of the lovely offerings of Pink Saturday hosted by Beverly at How Sweet the Sound...

7 comments:

  1. You have a great reason for being late. You will definitely be excused. You are doing a wonderful service. After so many years, to me they should have found a cure. Loved your pink show.

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  2. I applaud you on your participation in TBCRC. Not only is it a wish to have a cure for cancer but also to be a patient advocate with the medications that are becoming almost impossible for insurance companies to cover so people have truly gone without.

    Much success!

    Happy Pink Saturday
    Deanna :D

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  3. Great Blog...and it certainly looks like you had a great reason for not being on time for Pink Saturday...I applaud you! & thanks for joining my Blog...DEIDRE

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  4. Standing ovation for you my friend. I think you deserve to be around such a table of great women.
    Happy Belated PS... for me it's always PINK : )
    xoxoxo

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  5. Thank you ladies...Believe me these scientists are working very hard and giving it their all! A cure will be found...It is just so complicated! We advocates represent all of you! We are the face...

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  6. Happy Pink Saturday, Kim. I am so glad you shared this post. Everything about it makes me smile - and feel good.

    This is absolutely fantastic. Kudos to all. And, bravo to all who have fought and are fighting this battle. My heart and prayers are with all.

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  7. Thanks so much Beverly! and thanks for following!

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Thank you so much for visiting my Little Pink Blog:) It looks like I now have the ability to reply to your comments! YAY! So I hope you check to see if I have left you a reply, because I always read your comments. They really tickle me...Pink of course...